JOPLIN, Mo. — This is a story of a little boy who has now moved into palliative care as his doctors have confirmed there are no other treatment options for his brain tumor. Thursday evening police from dozens of departments, fire departments from tens of locations, classic cars, motorcycles, cosplay, friends, street rods, horses… hundreds turn out for little boy in palliative care for brain tumor.
You can click below to support the family through their GO FUND ME and read more of their journey on their Family Blog.
FROM FAMILY BLOG CLICK TO VIEW ON GO FUND ME: On February 27th, 2020, our 3 year old son Simon’s pediatrician ran an MRI after he showed some bizarre symptoms. It was confirmed he had a tumor growing in his brain. He was life-flighted to Children’s Mercy Hospital in Kansas City, MO where the tumor was promptly removed. After a few weeks of recovery, we were told the tumor was a grade IV neuroepithelial tumor and was highly aggressive and cancerous. We were floored. His oncologist laid out his chemotherapy regimen: 6 doses over 6 months. In December 2020, we found out his cancer had spread to his spine and continued to grow in his brain. He received radiation at that point for over a month and a half. We hoped against hope that would be the end of it, but just this week we discovered 2 more tumors and our doctor gave us the heart breaking news that this cancer just wouldn’t quit. Simon will be under going one more round of radiation to a large tumor site, then it’ll be palliative treatment till the end. This will be our third and final push for donations as we want to ensure both that Simon has an incredible last few months with his loved ones and that his post life services will be covered. We want to thank each and every one of you from the bottom of our hearts for everything. It wouldn’t have been the same without your help and that’s just a fact. #SimonStrong
- July 29, 2021by David Lindsey, OrganizerHey guys. Well we’re bringing this update with heavy heavy hearts. After 6 months of chemotherapy and 2 months of radiation, we received MRI photos that showed more tumor growth in little Simon’s brain and spine. Our doctors confirmed there are no other treatment options for him and we’ll be moving on to palliative care from here on out. Simon fought tooth and nail and we’re incredibly proud of everything he’s made it through. We couldn’t be more impressed. That being said, sometimes it doesn’t matter how much effort you put it. Life is life. Anyway, we’re reaching out for one final round of donations to ensure Simon has the most incredible time of his life in his final months and to ensure his post life services are paid for. We thank all of you dearly for everything you’ve done for us and for him. It made all the difference in the world. Thank you thank you thank you. #SimonStrong
- February 24, 2021by David Lindsey, OrganizerWe’re coming up on our matching funds donation week next weekend (the 5th-the 7th of March)! I just wanted to, again, thank each and every one of you for donating. We’d be in deep water without all of you. That being said, if you were planning to donate and can wait, we’d like to see how far we can take this matching fund! They’re only matching up to $2,500, but that’s pretty substantial for us. I’ll post another update that Friday. That being said, Simon is halfway through radiation and he’s taking it like a champ! We couldn’t be more proud of him. Thank you guys for sticking with us through this!
Posted by Miranda Bennett on Thursday, August 26, 2021
- January 28, 2021by David Lindsey, OrganizerI just want to say you all are so amazing. The outpouring of support we’ve received since Friday has been overwhelming! We understand you all have your own lives and financial obligations ESPECIALLY during this pandemic and can’t thank all of you enough. As you may have seen on Facebook, Simon starts radiation today. We’re really excited to see his progress and so proud of how he’s handling it all. Unfortunately, we got a call from Ronald Macdonald this morning that wasn’t great. Because of COVID restrictions, they aren’t willing to work around our schedule and provide us lodging while we’re in Kansas City each week. This was our plan for lodging AND food and now we have to cover it ourselves. We just keep hitting road bump after road bump. We’d be up the creek without a paddle at this point (and we still are a little), but we should be able to hang on just a little longer with the donations we’ve received so far. Thanks again guys and we’ll keep you updated as much as possible!
- January 22, 2021by David Lindsey, Organizer Hey guys. We saw some donations rolling in and thought we’d post an update for everyone. So as I’m sure most of you know, we found some more Timor growth. So Simon will be getting radiation therapy over the next 6 weeks. Future donations will go toward gas, food and his happiness and comfort. Thank you guys for everything.
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